LinkedIn Profile

Access Action Duchenne historical Linkedin company profile data on number of followers, employee headcount and more

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Ticker Symbol Entity Name As Of Date Company Name Followers Employees on Linkedin Link Industry Date Added Date Updated Description Website Specialities Logo HQ.Street HQ.City HQ.State HQ.Country HQ.Postal Headcount change in past 24 months Company Name Sector Industry
private:actionduchenne-2 1472480 May 21st, 2019 12:00AM Action Duchenne 216 21.00 Open Fund-Raising May 21st, 2019 06:30PM May 21st, 2019 06:30PM Duchenne muscular dystrophy (DMD) is a rare and complex genetic muscle wasting condition, mainly affecting males. It is one of the most severe muscular dystrophies, with muscle weakness appearing in early childhood between the ages of 2 and 5. Action Duchenne has a clear vision: a world where lives are no longer limited by Duchenne muscular dystrophy. The charity works to deliver the vision through our three core objectives: DEVELOPING EFFECTIVE TREATMENTS FOR ALL by funding research, educating clinicians and researchers, supporting clinical trials and campaigning for access. BUILDING A COMMUNITY by uniting families, educating about Duchenne and raising the profile of the condition to a wider audience. STRIVING FOR A MORE INCLUSIVE SOCIETY by promoting the importance of human equality, day-to-day acceptance of disability and accessibility for those with Duchenne. Thank you for helping us achieve our vision and deliver our objectives. Open Fundraising, Advocacy, Campaigning, Duchenne Muscular Dystrophy, Education, Care, Research, Support Open Epicentre, 41 West Street London London GB E11 4LJ Action Duchenne
private:actionduchenne-2 1472480 Mar 18th, 2018 12:00AM Action Duchenne 162 19.00 Open Fund-Raising Mar 18th, 2018 03:16PM Mar 18th, 2018 03:16PM Open Action Duchenne
private:actionduchenne-2 1472480 Feb 17th, 2018 12:00AM Action Duchenne 144 19.00 Open Fund-Raising Feb 17th, 2018 02:25PM Feb 17th, 2018 02:25PM Action Duchenne is a parent and patient led registered charity that exclusively funds research and fights on behalf of families living with Duchenne. Mission: The mission of the charity is to fund developments in medicines and treatments to enable a cure to be found for the disease while raising awareness of and campaigning for improvements and change in patient health and care provision. Duchenne is a severe and complex genetic muscle wasting disease. The condition is diagnosed in early childhood and affects mainly boys. Children are often in a wheelchair at the age of 10, and by their teenage years many are totally paralysed in need of 24 hour care and suffer respiratory, heart and spinal problems. Without effective health provision most young men die by their late teens or early 20s. The condition is life limiting. Currently there is no cure. Duchenne remains the largest genetic child killer. Duchenne is random in nature, it can occur unexpectedly in any family. Action Duchenne is unique in that it is the only charity that works exclusively with Duchenne. The charity is parent led with the Board of Trustees and CEO all affected directly by Duchenne. Action Duchenne
private:actionduchenne-2 1472480 Feb 16th, 2018 12:00AM Action Duchenne 144 19.00 Open Fund-Raising Feb 16th, 2017 08:15AM Feb 16th, 2017 08:15AM Action Duchenne is a parent and patient led registered charity that exclusively funds research and fights on behalf of families living with Duchenne. Mission: The mission of the charity is to fund developments in medicines and treatments to enable a cure to be found for the disease while raising awareness of and campaigning for improvements and change in patient health and care provision. Duchenne is a severe and complex genetic muscle wasting disease. The condition is diagnosed in early childhood and affects mainly boys. Children are often in a wheelchair at the age of 10, and by their teenage years many are totally paralysed in need of 24 hour care and suffer respiratory, heart and spinal problems. Without effective health provision most young men die by their late teens or early 20s. The condition is life limiting. Currently there is no cure. Duchenne remains the largest genetic child killer. Duchenne is random in nature, it can occur unexpectedly in any family. Action Duchenne is unique in that it is the only charity that works exclusively with Duchenne. The charity is parent led with the Board of Trustees and CEO all affected directly by Duchenne. Action Duchenne
private:actionduchenne-2 1472480 Feb 15th, 2018 12:00AM Action Duchenne 144 19.00 Open Fund-Raising Feb 15th, 2017 10:07AM Feb 15th, 2017 10:07AM Action Duchenne is a parent and patient led registered charity that exclusively funds research and fights on behalf of families living with Duchenne. Mission: The mission of the charity is to fund developments in medicines and treatments to enable a cure to be found for the disease while raising awareness of and campaigning for improvements and change in patient health and care provision. Duchenne is a severe and complex genetic muscle wasting disease. The condition is diagnosed in early childhood and affects mainly boys. Children are often in a wheelchair at the age of 10, and by their teenage years many are totally paralysed in need of 24 hour care and suffer respiratory, heart and spinal problems. Without effective health provision most young men die by their late teens or early 20s. The condition is life limiting. Currently there is no cure. Duchenne remains the largest genetic child killer. Duchenne is random in nature, it can occur unexpectedly in any family. Action Duchenne is unique in that it is the only charity that works exclusively with Duchenne. The charity is parent led with the Board of Trustees and CEO all affected directly by Duchenne. Action Duchenne
private:actionduchenne-2 1472480 Feb 14th, 2018 12:00AM Action Duchenne 144 19.00 Open Fund-Raising Feb 14th, 2017 01:50PM Feb 14th, 2017 01:50PM Action Duchenne is a parent and patient led registered charity that exclusively funds research and fights on behalf of families living with Duchenne. Mission: The mission of the charity is to fund developments in medicines and treatments to enable a cure to be found for the disease while raising awareness of and campaigning for improvements and change in patient health and care provision. Duchenne is a severe and complex genetic muscle wasting disease. The condition is diagnosed in early childhood and affects mainly boys. Children are often in a wheelchair at the age of 10, and by their teenage years many are totally paralysed in need of 24 hour care and suffer respiratory, heart and spinal problems. Without effective health provision most young men die by their late teens or early 20s. The condition is life limiting. Currently there is no cure. Duchenne remains the largest genetic child killer. Duchenne is random in nature, it can occur unexpectedly in any family. Action Duchenne is unique in that it is the only charity that works exclusively with Duchenne. The charity is parent led with the Board of Trustees and CEO all affected directly by Duchenne. Action Duchenne
private:actionduchenne-2 1472480 Feb 13th, 2018 12:00AM Action Duchenne 144 19.00 Open Fund-Raising Feb 13th, 2017 04:11PM Feb 13th, 2017 04:11PM Action Duchenne is a parent and patient led registered charity that exclusively funds research and fights on behalf of families living with Duchenne. Mission: The mission of the charity is to fund developments in medicines and treatments to enable a cure to be found for the disease while raising awareness of and campaigning for improvements and change in patient health and care provision. Duchenne is a severe and complex genetic muscle wasting disease. The condition is diagnosed in early childhood and affects mainly boys. Children are often in a wheelchair at the age of 10, and by their teenage years many are totally paralysed in need of 24 hour care and suffer respiratory, heart and spinal problems. Without effective health provision most young men die by their late teens or early 20s. The condition is life limiting. Currently there is no cure. Duchenne remains the largest genetic child killer. Duchenne is random in nature, it can occur unexpectedly in any family. Action Duchenne is unique in that it is the only charity that works exclusively with Duchenne. The charity is parent led with the Board of Trustees and CEO all affected directly by Duchenne. Action Duchenne
private:actionduchenne-2 1472480 Feb 12th, 2018 12:00AM Action Duchenne 144 19.00 Open Fund-Raising Feb 12th, 2017 04:15AM Feb 12th, 2017 04:15AM Action Duchenne is a parent and patient led registered charity that exclusively funds research and fights on behalf of families living with Duchenne. Mission: The mission of the charity is to fund developments in medicines and treatments to enable a cure to be found for the disease while raising awareness of and campaigning for improvements and change in patient health and care provision. Duchenne is a severe and complex genetic muscle wasting disease. The condition is diagnosed in early childhood and affects mainly boys. Children are often in a wheelchair at the age of 10, and by their teenage years many are totally paralysed in need of 24 hour care and suffer respiratory, heart and spinal problems. Without effective health provision most young men die by their late teens or early 20s. The condition is life limiting. Currently there is no cure. Duchenne remains the largest genetic child killer. Duchenne is random in nature, it can occur unexpectedly in any family. Action Duchenne is unique in that it is the only charity that works exclusively with Duchenne. The charity is parent led with the Board of Trustees and CEO all affected directly by Duchenne. Action Duchenne
private:actionduchenne-2 1472480 Feb 11th, 2018 12:00AM Action Duchenne 144 19.00 Open Fund-Raising Feb 11th, 2017 05:35AM Feb 11th, 2017 05:35AM Action Duchenne is a parent and patient led registered charity that exclusively funds research and fights on behalf of families living with Duchenne. Mission: The mission of the charity is to fund developments in medicines and treatments to enable a cure to be found for the disease while raising awareness of and campaigning for improvements and change in patient health and care provision. Duchenne is a severe and complex genetic muscle wasting disease. The condition is diagnosed in early childhood and affects mainly boys. Children are often in a wheelchair at the age of 10, and by their teenage years many are totally paralysed in need of 24 hour care and suffer respiratory, heart and spinal problems. Without effective health provision most young men die by their late teens or early 20s. The condition is life limiting. Currently there is no cure. Duchenne remains the largest genetic child killer. Duchenne is random in nature, it can occur unexpectedly in any family. Action Duchenne is unique in that it is the only charity that works exclusively with Duchenne. The charity is parent led with the Board of Trustees and CEO all affected directly by Duchenne. Action Duchenne
private:actionduchenne-2 1472480 Feb 10th, 2018 12:00AM Action Duchenne 144 19.00 Open Fund-Raising Feb 10th, 2017 06:43AM Feb 10th, 2017 06:43AM Action Duchenne is a parent and patient led registered charity that exclusively funds research and fights on behalf of families living with Duchenne. Mission: The mission of the charity is to fund developments in medicines and treatments to enable a cure to be found for the disease while raising awareness of and campaigning for improvements and change in patient health and care provision. Duchenne is a severe and complex genetic muscle wasting disease. The condition is diagnosed in early childhood and affects mainly boys. Children are often in a wheelchair at the age of 10, and by their teenage years many are totally paralysed in need of 24 hour care and suffer respiratory, heart and spinal problems. Without effective health provision most young men die by their late teens or early 20s. The condition is life limiting. Currently there is no cure. Duchenne remains the largest genetic child killer. Duchenne is random in nature, it can occur unexpectedly in any family. Action Duchenne is unique in that it is the only charity that works exclusively with Duchenne. The charity is parent led with the Board of Trustees and CEO all affected directly by Duchenne. Action Duchenne

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